How do people live life successfully with Parkinson's disease?

Authors: Kang, M.-Y. and Ellis-Hill, C.

Journal: Journal of Clinical Nursing

Publisher: Blackwell Publishing Ltd

eISSN: 1365-2702

ISSN: 0962-1067

DOI: 10.1111/jocn.12819

Abstract:

Aims and objectives: The aim of this paper is to explore how people live life successfully with Parkinson's disease and what contributed to the level of success. Objectives: To examine the level of success as defined by people with Parkinson's disease. To find what contributed to the level of success. Background: Self-care support has gained importance for supporting people with their chronic diseases including Parkinson's disease. Although self-care and life adjustments can improve patients' general well-being, it is unclear which approaches best facilitate positive adjustments to illness. Design: Semi-structured interviews with participants with Parkinson's disease. Methods: Eight participants living with Parkinson's disease for 2-16 years were recruited from a Parkinson's disease voluntary group in the UK. Interviews covered their perceived level of success and the factors which they perceived led to that success. Thematic analysis was used to analyse the data. Results: Participants rated a high level of success in living with Parkinson's disease with an average personal rating 75/100 despite facing difficulties. Successful living was perceived to have taken place when people were either (1) able to return to their usual state of health or (2) considered themselves to be stable within a new/readjusted state of health. Aspects which were perceived to support positive psychosocial adjustment included a positive mindset, determination, acceptance of new challenges and family support. Conclusion: Maintaining usual life and physical ability is the major concern among the people with Parkinson's disease. It would be helpful for health care professionals to identify what constitutes a 'usual' life for that person and to support them to develop a positive mindset and acceptance of new challenges, drawing on the determination of the person as well as any available family support. Relevance to clinical practice: In supporting self-care, it is helpful to gain information about the subjective experience of living with Parkinson's disease including their perceived level of success at the time and what led to that perceived success for that person.

https://eprints.bournemouth.ac.uk/22672/

Source: Scopus

How do people live life successfully with Parkinson's disease?

Authors: Kang, M.Y. and Ellis-Hill, C.

Journal: Journal of Clinical Nursing

Volume: 24

Issue: 15-16

Pages: 2314-2322

eISSN: 1365-2702

ISSN: 0962-1067

DOI: 10.1111/jocn.12819

Abstract:

Aims and objectives: The aim of this paper is to explore how people live life successfully with Parkinson's disease and what contributed to the level of success. Objectives: To examine the level of success as defined by people with Parkinson's disease. To find what contributed to the level of success. Background: Self-care support has gained importance for supporting people with their chronic diseases including Parkinson's disease. Although self-care and life adjustments can improve patients' general well-being, it is unclear which approaches best facilitate positive adjustments to illness. Design: Semi-structured interviews with participants with Parkinson's disease. Methods: Eight participants living with Parkinson's disease for 2-16 years were recruited from a Parkinson's disease voluntary group in the UK. Interviews covered their perceived level of success and the factors which they perceived led to that success. Thematic analysis was used to analyse the data. Results: Participants rated a high level of success in living with Parkinson's disease with an average personal rating 75/100 despite facing difficulties. Successful living was perceived to have taken place when people were either (1) able to return to their usual state of health or (2) considered themselves to be stable within a new/readjusted state of health. Aspects which were perceived to support positive psychosocial adjustment included a positive mindset, determination, acceptance of new challenges and family support. Conclusion: Maintaining usual life and physical ability is the major concern among the people with Parkinson's disease. It would be helpful for health care professionals to identify what constitutes a 'usual' life for that person and to support them to develop a positive mindset and acceptance of new challenges, drawing on the determination of the person as well as any available family support. Relevance to clinical practice: In supporting self-care, it is helpful to gain information about the subjective experience of living with Parkinson's disease including their perceived level of success at the time and what led to that perceived success for that person.

https://eprints.bournemouth.ac.uk/22672/

Source: Scopus

How do people live life successfully with Parkinson's disease?

Authors: Kang, M.-Y. and Ellis-Hill, C.

Journal: J Clin Nurs

Volume: 24

Issue: 15-16

Pages: 2314-2322

eISSN: 1365-2702

DOI: 10.1111/jocn.12819

Abstract:

AIMS AND OBJECTIVES: The aim of this paper is to explore how people live life successfully with Parkinson's disease and what contributed to the level of success. OBJECTIVES: To examine the level of success as defined by people with Parkinson's disease. To find what contributed to the level of success. BACKGROUND: Self-care support has gained importance for supporting people with their chronic diseases including Parkinson's disease. Although self-care and life adjustments can improve patients' general well-being, it is unclear which approaches best facilitate positive adjustments to illness. DESIGN: Semi-structured interviews with participants with Parkinson's disease. METHODS: Eight participants living with Parkinson's disease for 2-16 years were recruited from a Parkinson's disease voluntary group in the UK. Interviews covered their perceived level of success and the factors which they perceived led to that success. Thematic analysis was used to analyse the data. RESULTS: Participants rated a high level of success in living with Parkinson's disease with an average personal rating 75/100 despite facing difficulties. Successful living was perceived to have taken place when people were either (1) able to return to their usual state of health or (2) considered themselves to be stable within a new/readjusted state of health. Aspects which were perceived to support positive psychosocial adjustment included a positive mindset, determination, acceptance of new challenges and family support. CONCLUSION: Maintaining usual life and physical ability is the major concern among the people with Parkinson's disease. It would be helpful for health care professionals to identify what constitutes a 'usual' life for that person and to support them to develop a positive mindset and acceptance of new challenges, drawing on the determination of the person as well as any available family support. RELEVANCE TO CLINICAL PRACTICE: In supporting self-care, it is helpful to gain information about the subjective experience of living with Parkinson's disease including their perceived level of success at the time and what led to that perceived success for that person.

https://eprints.bournemouth.ac.uk/22672/

Source: PubMed

How do people live life successfully with Parkinson's disease?

Authors: Kang, M.-Y. and Ellis-Hill, C.

Journal: JOURNAL OF CLINICAL NURSING

Volume: 24

Issue: 15-16

Pages: 2314-2322

eISSN: 1365-2702

ISSN: 0962-1067

DOI: 10.1111/jocn.12819

https://eprints.bournemouth.ac.uk/22672/

Source: Web of Science (Lite)

How do people live life successfully with Parkinson's disease?

Authors: Kang, M.-Y. and Ellis-Hill, C.

Journal: Journal of clinical nursing

Volume: 24

Issue: 15-16

Pages: 2314-2322

eISSN: 1365-2702

ISSN: 0962-1067

DOI: 10.1111/jocn.12819

Abstract:

Aims and objectives

The aim of this paper is to explore how people live life successfully with Parkinson's disease and what contributed to the level of success.

Objectives

To examine the level of success as defined by people with Parkinson's disease. To find what contributed to the level of success.

Background

Self-care support has gained importance for supporting people with their chronic diseases including Parkinson's disease. Although self-care and life adjustments can improve patients' general well-being, it is unclear which approaches best facilitate positive adjustments to illness.

Design

Semi-structured interviews with participants with Parkinson's disease.

Methods

Eight participants living with Parkinson's disease for 2-16 years were recruited from a Parkinson's disease voluntary group in the UK. Interviews covered their perceived level of success and the factors which they perceived led to that success. Thematic analysis was used to analyse the data.

Results

Participants rated a high level of success in living with Parkinson's disease with an average personal rating 75/100 despite facing difficulties. Successful living was perceived to have taken place when people were either (1) able to return to their usual state of health or (2) considered themselves to be stable within a new/readjusted state of health. Aspects which were perceived to support positive psychosocial adjustment included a positive mindset, determination, acceptance of new challenges and family support.

Conclusion

Maintaining usual life and physical ability is the major concern among the people with Parkinson's disease. It would be helpful for health care professionals to identify what constitutes a 'usual' life for that person and to support them to develop a positive mindset and acceptance of new challenges, drawing on the determination of the person as well as any available family support.

Relevance to clinical practice

In supporting self-care, it is helpful to gain information about the subjective experience of living with Parkinson's disease including their perceived level of success at the time and what led to that perceived success for that person.

https://eprints.bournemouth.ac.uk/22672/

Source: Europe PubMed Central

How do people live life successfully with Parkinson's disease?

Authors: Kang, M.Y. and Ellis-Hill, C.

Journal: Journal of Clinical Nursing

Volume: 24

Issue: 15-16

Pages: 2314-2322

ISSN: 0962-1067

Abstract:

The aim of this paper is to explore how people live life successfully with Parkinson's disease and what contributed to the level of success.

https://eprints.bournemouth.ac.uk/22672/

Source: BURO EPrints