To tell or not to tell: Barriers and facilitators in family communication about genetic risk
Authors: Forrest, K., Simpson, S.A., Wilson, B.J., van Teijlingen, E.R., McKee, L., Haites, N. and Matthews, E.
Journal: Clinical Genetics
Volume: 64
Issue: 4
Pages: 317-326
ISSN: 0009-9163
DOI: 10.1034/j.1399-0004.2003.00142.x
Abstract:Communication about genetic risk in families is an important issue for genetic counsellors. The objective of this study was to explore the barriers and facilitators in family communication about genetic risk. Semi-structured interviews were undertaken with patients in the Northeast of Scotland who had attended genetic counselling for risk of hereditary breast and ovarian cancer and Huntington's disease, and with some spouses/partners. The interviews confirmed that the issue of disclosure was a problem for some, and that there were generic communication issues common to both groups. Telling family members about genetic risk was generally seen as a family responsibility and family structures, dynamics and 'rules' influenced disclosure decisions. A sense of responsibility towards younger generations was also important. The level of certainty felt by a person in relation to his or her own risk estimate also influenced what he or she could tell other family members. Communication within a family about genetic risk is a complex issue and is influenced by both pre-existing familial and cultural factors and individuals' responses to risk information. If genetic counsellors understood how these factors operate in individual families they might be able to identify effective strategies to promote considered decisions and prevent unnecessary emotional distress.
Source: Scopus
To tell or not to tell: barriers and facilitators in family communication about genetic risk.
Authors: Forrest, K., Simpson, S.A., Wilson, B.J., van Teijlingen, E.R., McKee, L., Haites, N. and Matthews, E.
Journal: Clin Genet
Volume: 64
Issue: 4
Pages: 317-326
ISSN: 0009-9163
DOI: 10.1034/j.1399-0004.2003.00142.x
Abstract:Communication about genetic risk in families is an important issue for genetic counsellors. The objective of this study was to explore the barriers and facilitators in family communication about genetic risk. Semi-structured interviews were undertaken with patients in the Northeast of Scotland who had attended genetic counselling for risk of hereditary breast and ovarian cancer and Huntington's disease, and with some spouses/partners. The interviews confirmed that the issue of disclosure was a problem for some, and that there were generic communication issues common to both groups. Telling family members about genetic risk was generally seen as a family responsibility and family structures, dynamics and 'rules' influenced disclosure decisions. A sense of responsibility towards younger generations was also important. The level of certainty felt by a person in relation to his or her own risk estimate also influenced what he or she could tell other family members. Communication within a family about genetic risk is a complex issue and is influenced by both pre-existing familial and cultural factors and individuals' responses to risk information. If genetic counsellors understood how these factors operate in individual families they might be able to identify effective strategies to promote considered decisions and prevent unnecessary emotional distress.
Source: PubMed
To tell or not to tell: barriers and facilitators in family communication about genetic risk
Authors: Forrest, K., Simpson, S.A., Wilson, B.J., van Teijlingen, E.R., McKee, L., Haites, N. and Matthews, E.
Journal: CLINICAL GENETICS
Volume: 64
Issue: 4
Pages: 317-326
ISSN: 0009-9163
DOI: 10.1034/j.1399-0004.2003.00142.x
Source: Web of Science (Lite)
To tell or not to tell: Barriers and facilitators in family communication about genetic risk
Authors: Forrest, K., Simpson, S.A., Wilson, B.J., van Teijlingen, E., McKee, L., Haites, N. and Matthews, E.
Journal: Clinical Genetics
Volume: 64
Pages: 317-326
ISSN: 0009-9163
DOI: 10.1034/j.1399-0004.2003.00142.x
Abstract:Communication about genetic risk in families is an important issue for genetic counsellors. The objective of this study was to explore the barriers and facilitators in family communication about genetic risk. Semi-structured interviews were undertaken with patients in the Northeast of Scotland who had attended genetic counselling for risk of hereditary breast and ovarian cancer and Huntington's disease, and with some spouses/partners. The interviews confirmed that the issue of disclosure was a problem for some, and that there were generic communication issues common to both groups. Telling family members about genetic risk was generally seen as a family responsibility and family structures, dynamics and 'rules' influenced disclosure decisions. A sense of responsibility towards younger generations was also important. The level of certainty felt by a person in relation to his or her own risk estimate also influenced what he or she could tell other family members. Communication within a family about genetic risk is a complex issue and is influenced by both pre-existing familial and cultural factors and individuals' responses to risk information. If genetic counsellors understood how these factors operate in individual families they might be able to identify effective strategies to promote considered decisions and prevent unnecessary emotional distress.
Source: Manual
Preferred by: Edwin van Teijlingen
To tell or not to tell: barriers and facilitators in family communication about genetic risk.
Authors: Forrest, K., Simpson, S.A., Wilson, B.J., van Teijlingen, E.R., McKee, L., Haites, N. and Matthews, E.
Journal: Clinical genetics
Volume: 64
Issue: 4
Pages: 317-326
eISSN: 1399-0004
ISSN: 0009-9163
DOI: 10.1034/j.1399-0004.2003.00142.x
Abstract:Communication about genetic risk in families is an important issue for genetic counsellors. The objective of this study was to explore the barriers and facilitators in family communication about genetic risk. Semi-structured interviews were undertaken with patients in the Northeast of Scotland who had attended genetic counselling for risk of hereditary breast and ovarian cancer and Huntington's disease, and with some spouses/partners. The interviews confirmed that the issue of disclosure was a problem for some, and that there were generic communication issues common to both groups. Telling family members about genetic risk was generally seen as a family responsibility and family structures, dynamics and 'rules' influenced disclosure decisions. A sense of responsibility towards younger generations was also important. The level of certainty felt by a person in relation to his or her own risk estimate also influenced what he or she could tell other family members. Communication within a family about genetic risk is a complex issue and is influenced by both pre-existing familial and cultural factors and individuals' responses to risk information. If genetic counsellors understood how these factors operate in individual families they might be able to identify effective strategies to promote considered decisions and prevent unnecessary emotional distress.
Source: Europe PubMed Central