On being outdoors: How people with dementia experience and deal with vulnerabilities
Authors: Bartlett, R. and Brannelly, T.
Journal: Social Science and Medicine
Volume: 235
eISSN: 1873-5347
ISSN: 0277-9536
DOI: 10.1016/j.socscimed.2019.05.041
Abstract:Vulnerability is a problematic label routinely applied to people with dementia, yet their situated experiences of vulnerability have not been prioritised or documented. Drawing on empirical data collected using a novel methodology - walking interviews with 15 people with dementia living in Southern England, followed by a sit-down interview that included a nominated family member - this paper advances understanding of how vulnerability is experienced and dealt with by people with dementia when outdoors, and at times shared with family carers. Data were analysed using abductive techniques; a thematic coding framework was created from the dataset, in addition to the application of critical theories of vulnerability and disability. We found that vulnerability is characterised by a sense of ‘ontological vulnerability’ for the person diagnosed with the condition - that is, an awareness of failing knowledge about oneself or the ‘rules’ of outdoor life, which individuals experienced emotionally and dealt with civically. People with dementia attempted to manage risks and anxieties, often doing this independently so as not to burden family members. These findings highlight how people with dementia experience and deal with vulnerability when outdoors, which others need to acknowledge and support to enable people with dementia and their families to work though these challenges, in a family-orientated way when risk planning.
https://eprints.bournemouth.ac.uk/32412/
Source: Scopus
On being outdoors: How people with dementia experience and deal with vulnerabilities.
Authors: Bartlett, R. and Brannelly, T.
Journal: Soc Sci Med
Volume: 235
Pages: 112336
eISSN: 1873-5347
DOI: 10.1016/j.socscimed.2019.05.041
Abstract:Vulnerability is a problematic label routinely applied to people with dementia, yet their situated experiences of vulnerability have not been prioritised or documented. Drawing on empirical data collected using a novel methodology - walking interviews with 15 people with dementia living in Southern England, followed by a sit-down interview that included a nominated family member - this paper advances understanding of how vulnerability is experienced and dealt with by people with dementia when outdoors, and at times shared with family carers. Data were analysed using abductive techniques; a thematic coding framework was created from the dataset, in addition to the application of critical theories of vulnerability and disability. We found that vulnerability is characterised by a sense of 'ontological vulnerability' for the person diagnosed with the condition - that is, an awareness of failing knowledge about oneself or the 'rules' of outdoor life, which individuals experienced emotionally and dealt with civically. People with dementia attempted to manage risks and anxieties, often doing this independently so as not to burden family members. These findings highlight how people with dementia experience and deal with vulnerability when outdoors, which others need to acknowledge and support to enable people with dementia and their families to work though these challenges, in a family-orientated way when risk planning.
https://eprints.bournemouth.ac.uk/32412/
Source: PubMed
On being outdoors: How people with dementia experience and deal with vulnerabilities
Authors: Bartlett, R. and Brannelly, P.
Journal: Social Science and Medicine
Publisher: Elsevier
ISSN: 0277-9536
DOI: 10.1016/j.socscimed.2019.05.041
Abstract:Vulnerability is a problematic label routinely applied to people with dementia, yet their situated experiences of vulnerability have not been prioritised or documented. Drawing on empirical data collected using a novel methodology - walking interviews with 15 people with dementia living in Southern England, followed by a sit-down interview that included a nominated family member - this paper advances understanding of how vulnerability is experienced and dealt with by people with dementia when outdoors, and at times shared with family carers. Data were analysed using abductive techniques; a thematic coding framework was created from the dataset, in addition to the application of critical theories of vulnerability and disability. We found that vulnerability is characterised by a sense of ‘ontological vulnerability’ for the person diagnosed with the condition - that is, an awareness of failing knowledge about oneself or the ‘rules’ of outdoor life, which individuals experienced emotionally and dealt with civically. People with dementia attempted to manage risks and anxieties, often doing this independently so as not to burden family members. These findings highlight how people with dementia experience and deal with vulnerability when outdoors, which others need to acknowledge and support to enable people with dementia and their families to work though these challenges, in a family-orientated way when risk planning.
https://eprints.bournemouth.ac.uk/32412/
Source: Manual
On being outdoors: How people with dementia experience and deal with vulnerabilities.
Authors: Bartlett, R. and Brannelly, T.
Journal: Social science & medicine (1982)
Volume: 235
Pages: 112336
eISSN: 1873-5347
ISSN: 0277-9536
DOI: 10.1016/j.socscimed.2019.05.041
Abstract:Vulnerability is a problematic label routinely applied to people with dementia, yet their situated experiences of vulnerability have not been prioritised or documented. Drawing on empirical data collected using a novel methodology - walking interviews with 15 people with dementia living in Southern England, followed by a sit-down interview that included a nominated family member - this paper advances understanding of how vulnerability is experienced and dealt with by people with dementia when outdoors, and at times shared with family carers. Data were analysed using abductive techniques; a thematic coding framework was created from the dataset, in addition to the application of critical theories of vulnerability and disability. We found that vulnerability is characterised by a sense of 'ontological vulnerability' for the person diagnosed with the condition - that is, an awareness of failing knowledge about oneself or the 'rules' of outdoor life, which individuals experienced emotionally and dealt with civically. People with dementia attempted to manage risks and anxieties, often doing this independently so as not to burden family members. These findings highlight how people with dementia experience and deal with vulnerability when outdoors, which others need to acknowledge and support to enable people with dementia and their families to work though these challenges, in a family-orientated way when risk planning.
https://eprints.bournemouth.ac.uk/32412/
Source: Europe PubMed Central
On being outdoors: How people with dementia experience and deal with vulnerabilities
Authors: Bartlett, R. and Brannelly, T.
Journal: Social Science and Medicine
Volume: 235
Issue: August
ISSN: 0277-9536
Abstract:Vulnerability is a problematic label routinely applied to people with dementia, yet their situated experiences of vulnerability have not been prioritised or documented. Drawing on empirical data collected using a novel methodology - walking interviews with 15 people with dementia living in Southern England, followed by a sit-down interview that included a nominated family member - this paper advances understanding of how vulnerability is experienced and dealt with by people with dementia when outdoors, and at times shared with family carers. Data were analysed using abductive techniques; a thematic coding framework was created from the dataset, in addition to the application of critical theories of vulnerability and disability. We found that vulnerability is characterised by a sense of ‘ontological vulnerability’ for the person diagnosed with the condition - that is, an awareness of failing knowledge about oneself or the ‘rules’ of outdoor life, which individuals experienced emotionally and dealt with civically. People with dementia attempted to manage risks and anxieties, often doing this independently so as not to burden family members. These findings highlight how people with dementia experience and deal with vulnerability when outdoors, which others need to acknowledge and support to enable people with dementia and their families to work though these challenges, in a family-orientated way when risk planning.
https://eprints.bournemouth.ac.uk/32412/
Source: BURO EPrints