Hearing the Voice of a Shadow Child: Healthy Siblings Experience of Cystic Fibrosis and Other Life-Threatening Conditions.
Authors: Cox, A. and Pritchard, C.
Journal: J Patient Exp
Volume: 7
Issue: 6
Pages: 878-881
ISSN: 2374-3735
DOI: 10.1177/2374373520948652
Abstract:Cystic fibrosis (CF) is a chronic, life-threatening disease, similar to other chronic life-disrupting pediatric conditions, and this creates physical and psychosocial problems for parents and the healthy sibling/s of the sick child, who often become sibling carers. It is feared that, despite good intentions, professionals fail to hear the authentic voice of those intimately involved, especially these sibling carers, who can feel they became a "shadow child." This study is a partnership between an academic and a former CF sibling carer, who wrote a "fairy story" for his children about the Uncle they never knew. It is an effort to hear the "voice of shadow children" who can feel left behind and unseen as families and professionals focus upon their ill sibling.
https://eprints.bournemouth.ac.uk/35100/
Source: PubMed
Hearing the Voice of a Shadow Child: Healthy Siblings Experience of Cystic Fibrosis and Other Life-Threatening Conditions
Authors: Cox, A. and Pritchard, C.
Journal: JOURNAL OF PATIENT EXPERIENCE
Volume: 7
Issue: 6
Pages: 878-881
eISSN: 2374-3735
ISSN: 2374-3743
DOI: 10.1177/2374373520948652
https://eprints.bournemouth.ac.uk/35100/
Source: Web of Science (Lite)
Hearing the Voice of a Shadow Child: Healthy Siblings Experience of Cystic Fibrosis and Other Life-Threatening Conditions.
Authors: Cox, A. and Pritchard, C.
Journal: J Patient Exp
Volume: 7
Issue: 6
Pages: 878-881
ISSN: 2374-3735
DOI: 10.1177/2374373520948652
Abstract:Cystic fibrosis (CF) is a chronic, life-threatening disease, similar to other chronic life-disrupting pediatric conditions, and this creates physical and psychosocial problems for parents and the healthy sibling/s of the sick child, who often become sibling carers. It is feared that, despite good intentions, professionals fail to hear the authentic voice of those intimately involved, especially these sibling carers, who can feel they became a "shadow child." This study is a partnership between an academic and a former CF sibling carer, who wrote a "fairy story" for his children about the Uncle they never knew. It is an effort to hear the "voice of shadow children" who can feel left behind and unseen as families and professionals focus upon their ill sibling.
https://eprints.bournemouth.ac.uk/35100/
Source: Manual
Hearing the Voice of a Shadow Child: Healthy Siblings Experience of Cystic Fibrosis and Other Life-Threatening Conditions.
Authors: Cox, A. and Pritchard, C.
Journal: Journal of patient experience
Volume: 7
Issue: 6
Pages: 878-881
eISSN: 2374-3743
ISSN: 2374-3735
DOI: 10.1177/2374373520948652
Abstract:Cystic fibrosis (CF) is a chronic, life-threatening disease, similar to other chronic life-disrupting pediatric conditions, and this creates physical and psychosocial problems for parents and the healthy sibling/s of the sick child, who often become sibling carers. It is feared that, despite good intentions, professionals fail to hear the authentic voice of those intimately involved, especially these sibling carers, who can feel they became a "shadow child." This study is a partnership between an academic and a former CF sibling carer, who wrote a "fairy story" for his children about the Uncle they never knew. It is an effort to hear the "voice of shadow children" who can feel left behind and unseen as families and professionals focus upon their ill sibling.
https://eprints.bournemouth.ac.uk/35100/
Source: Europe PubMed Central
Hearing the Voice of a Shadow Child: Healthy Siblings Experience of Cystic Fibrosis and Other Life-Threatening Conditions.
Authors: Cox, A. and Pritchard, C.
Journal: Journal of Patient Experience
Volume: 7
Issue: 6
Pages: 878-881
ISSN: 2372-0247
Abstract:Cystic fibrosis (CF) is a chronic, life-threatening disease, similar to other chronic life-disrupting pediatric conditions, and this creates physical and psychosocial problems for parents and the healthy sibling/s of the sick child, who often become sibling carers. It is feared that, despite good intentions, professionals fail to hear the authentic voice of those intimately involved, especially these sibling carers, who can feel they became a "shadow child." This study is a partnership between an academic and a former CF sibling carer, who wrote a "fairy story" for his children about the Uncle they never knew. It is an effort to hear the "voice of shadow children" who can feel left behind and unseen as families and professionals focus upon their ill sibling.
https://eprints.bournemouth.ac.uk/35100/
Source: BURO EPrints