Challenges encountered by patients with end-stage kidney disease in accessing symptom management services: A narrative inquiry.
Authors: Ng, M.S.N., Hui, Y.H., Law, B.Y.S., Wong, C.L. and So, W.K.W.
Journal: J Adv Nurs
Volume: 77
Issue: 3
Pages: 1391-1402
eISSN: 1365-2648
DOI: 10.1111/jan.14678
Abstract:AIM: To understand the storied experiences of accessing symptom management services of patients with end-stage kidney disease (ESKD) who are receiving maintenance dialysis. DESIGN: Narrative inquiry. METHODS: Ten patients with ESKD who were receiving dialysis were recruited at two regional hospitals in Hong Kong and interviewed three times each between July 2017-July 2018 to capture their narratives. The data were analysed using the narrative inquiry approach from the perspective of Levesque's framework of access to care. RESULTS: Five themes emerged from the participants' narratives. The first theme illustrated access to care as a process by which symptom management needs were met. However, clinicians occasionally identified patients based on their diseases instead of their needs and this process was affected differently by interpersonal and system factors. The themes 'building trust' and 'facilitating communication' described interpersonal factors that were essential to maintaining a constructive patient-clinician partnership. The themes 'balancing efficiency' and 'navigating fragmented system' described system-related factors. CONCLUSIONS: This study identified the factors that influenced the delivery and/or reception of symptom management services for patients with ESKD who were receiving dialysis. The results suggest that healthcare services should be streamlined based on patients' needs and that this process should address the important elements of trust and communication. IMPACT: The study's results suggest potential improvements to symptom management services that would enable patients' needs to be addressed in a timely and humanistic manner.
Source: PubMed
Challenges encountered by patients with end-stage kidney disease in accessing symptom management services: A narrative inquiry
Authors: Ng, M.S.N., Hui, Y.H., Law, B.Y.S., Wong, C.L. and So, W.K.W.
Journal: JOURNAL OF ADVANCED NURSING
Volume: 77
Issue: 3
Pages: 1391-1402
eISSN: 1365-2648
ISSN: 0309-2402
DOI: 10.1111/jan.14678
Source: Web of Science (Lite)
Challenges encountered by patients with end-stage kidney disease in accessing symptom management services: A narrative inquiry.
Authors: Ng, M.S.N., Hui, Y.H., Law, Y.S., Wong, C.L. and So, W.K.W.
Journal: Journal of Advanced Nursing
Volume: 77
Issue: 3
Pages: 1391-1402
DOI: 10.1111/jan.14678
Source: Manual
Challenges encountered by patients with end-stage kidney disease in accessing symptom management services: A narrative inquiry.
Authors: Ng, M.S.N., Hui, Y.H., Law, B.Y.S., Wong, C.L. and So, W.K.W.
Journal: Journal of advanced nursing
Volume: 77
Issue: 3
Pages: 1391-1402
eISSN: 1365-2648
ISSN: 0309-2402
DOI: 10.1111/jan.14678
Abstract:Aim
To understand the storied experiences of accessing symptom management services of patients with end-stage kidney disease (ESKD) who are receiving maintenance dialysis.Design
Narrative inquiry.Methods
Ten patients with ESKD who were receiving dialysis were recruited at two regional hospitals in Hong Kong and interviewed three times each between July 2017-July 2018 to capture their narratives. The data were analysed using the narrative inquiry approach from the perspective of Levesque's framework of access to care.Results
Five themes emerged from the participants' narratives. The first theme illustrated access to care as a process by which symptom management needs were met. However, clinicians occasionally identified patients based on their diseases instead of their needs and this process was affected differently by interpersonal and system factors. The themes 'building trust' and 'facilitating communication' described interpersonal factors that were essential to maintaining a constructive patient-clinician partnership. The themes 'balancing efficiency' and 'navigating fragmented system' described system-related factors.Conclusions
This study identified the factors that influenced the delivery and/or reception of symptom management services for patients with ESKD who were receiving dialysis. The results suggest that healthcare services should be streamlined based on patients' needs and that this process should address the important elements of trust and communication.Impact
The study's results suggest potential improvements to symptom management services that would enable patients' needs to be addressed in a timely and humanistic manner.Source: Europe PubMed Central