A humanisation approach for the management of Joint Hypermobility Syndrome/Ehlers-Danlos Syndrome-Hypermobility Type (JHS/EDS-HT)

This data was imported from PubMed:

Authors: Clark, C.J. and Knight, I.

http://eprints.bournemouth.ac.uk/29840/

Journal: Int J Qual Stud Health Well-being

Volume: 12

Issue: 1

Pages: 1371993

eISSN: 1748-2631

DOI: 10.1080/17482631.2017.1371993

Joint Hypermobility Syndrome/Ehlers-Danlos Syndrome-Hypermobility Type (JHS/EDS-HT) is a complex and multisystemic condition which significantly impacts on a person's health and well-being and is challenging for health professionals (HPs) to manage. People with JHS/EDS-HT and HPs recognise the individual nature and the complexities of the condition. There is a requirement to understand the condition within the context of the individual human dimensions of illness and healing. The aim of this paper is to explore the management of this condition using a theoretical model referred to as the Humanisation Framework.  It is suggested that using the philosophical dimensions of this framework will empower HPs and those with JHS/EDS-HT to work together to proactively manage this condition. The eight dimensions of the Humanisation Framework facilitate an experiential understanding of the person within their context and environment, providing a constructive adjunct to the evidence-based management of those with JHS/EDS-HT. The humanisation framework was developed for health and social care and uses the philosophy behind well-being and what makes well-being possible. This paper explores how HPs may use aspects of the framework to understand the condition and empower and motivate those with JHS/EDS-HT to be active participants in their own well-being.

This data was imported from Scopus:

Authors: Clark, C.J. and Knight, I.

http://eprints.bournemouth.ac.uk/29840/

Journal: International Journal of Qualitative Studies on Health and Well-being

Volume: 12

Issue: 1

eISSN: 1748-2631

ISSN: 1748-2623

DOI: 10.1080/17482631.2017.1371993

© 2017, © 2017 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. Joint Hypermobility Syndrome/Ehlers-Danlos Syndrome—Hypermobility Type (JHS/EDS-HT) is a complex and multisystemic condition which significantly impacts on a person’s health and well-being and is challenging for health professionals (HPs) to manage. People with JHS/EDS-HT and HPs recognise the individual nature and the complexities of the condition. There is a requirement to understand the condition within the context of the individual human dimensions of illness and healing. The aim of this paper is to explore the management of this condition using a theoretical model referred to as the Humanisation Framework.  It is suggested that using the philosophical dimensions of this framework will empower HPs and those with JHS/EDS-HT to work together to proactively manage this condition. The eight dimensions of the Humanisation Framework facilitate an experiential understanding of the person within their context and environment, providing a constructive adjunct to the evidence-based management of those with JHS/EDS-HT. The humanisation framework was developed for health and social care and uses the philosophy behind well-being and what makes well-being possible. This paper explores how HPs may use aspects of the framework to understand the condition and empower and motivate those with JHS/EDS-HT to be active participants in their own well-being.

This data was imported from Web of Science (Lite):

Authors: Clark, C.J. and Knight, I.

http://eprints.bournemouth.ac.uk/29840/

Journal: INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING

Volume: 12

Issue: 1

eISSN: 1748-2631

ISSN: 1748-2623

DOI: 10.1080/17482631.2017.1371993

The data on this page was last updated at 05:19 on April 6, 2020.