The experience of palliative care service provision for people with non-malignant respiratory disease and their family carers: An all-Ireland qualitative study
Authors: Mc Veigh, C., Reid, J., Larkin, P., Porter, S. and Hudson, P.
Journal: Journal of Advanced Nursing
Volume: 74
Issue: 2
Pages: 383-394
eISSN: 1365-2648
ISSN: 0309-2402
DOI: 10.1111/jan.13453
Abstract:Aim: To explore specialist and generalist palliative care provision for people with non-malignant respiratory disease, in rural and urban areas in the North and Republic of Ireland. Background: Globally, palliative care is recommended as an appropriate healthcare option for people with advanced non-malignant lung disease. Yet, there is limited evidence regarding the integration of palliative care for this client group. Design: Qualitative study. Methods: Convenience sample of 17 bereaved carers and 18 healthcare professionals recruited from two rural and two urban sites on the Island of Ireland. Data were collected throughout 2012 and 2013 through semi-structured interviews with carers of patients with Chronic Obstructive Pulmonary Disease (N = 12), interstitial lung disease (N = 4) or bronchiectasis (N = 1) who had died 3–18 months previously; and four focus groups with healthcare professionals. Data were analysed using a thematic analysis framework. Results: Carers’ interviews yielded three overarching themes: (1) lack of preparedness for death, due to ambiguity regarding disease trajectory; (2) lack of consistency in palliative care delivery, in relation with the receipt of generalist and specialist palliative care; and (3) role ambiguity, related to their caregiving role. Focus groups identified two overarching themes: (1) barriers to appropriate palliative care; and (2) the future direction of palliative care for patient with non-malignant respiratory disease. Conclusion: The uncertain disease trajectory was not only experienced by carers but also healthcare professionals. Although referral to specialist palliative care services was perceived as increasing, the availability and coordination of generalist and specialist palliative care services were fragmented and varied dependent on geographical location.
https://eprints.bournemouth.ac.uk/30073/
Source: Scopus
The experience of palliative care service provision for people with non-malignant respiratory disease and their family carers: An all-Ireland qualitative study.
Authors: Mc Veigh, C., Reid, J., Larkin, P., Porter, S. and Hudson, P.
Journal: J Adv Nurs
Volume: 74
Issue: 2
Pages: 383-394
eISSN: 1365-2648
DOI: 10.1111/jan.13453
Abstract:AIM: To explore specialist and generalist palliative care provision for people with non-malignant respiratory disease, in rural and urban areas in the North and Republic of Ireland. BACKGROUND: Globally, palliative care is recommended as an appropriate healthcare option for people with advanced non-malignant lung disease. Yet, there is limited evidence regarding the integration of palliative care for this client group. DESIGN: Qualitative study. METHODS: Convenience sample of 17 bereaved carers and 18 healthcare professionals recruited from two rural and two urban sites on the Island of Ireland. Data were collected throughout 2012 and 2013 through semi-structured interviews with carers of patients with Chronic Obstructive Pulmonary Disease (N = 12), interstitial lung disease (N = 4) or bronchiectasis (N = 1) who had died 3-18 months previously; and four focus groups with healthcare professionals. Data were analysed using a thematic analysis framework. RESULTS: Carers' interviews yielded three overarching themes: (1) lack of preparedness for death, due to ambiguity regarding disease trajectory; (2) lack of consistency in palliative care delivery, in relation with the receipt of generalist and specialist palliative care; and (3) role ambiguity, related to their caregiving role. Focus groups identified two overarching themes: (1) barriers to appropriate palliative care; and (2) the future direction of palliative care for patient with non-malignant respiratory disease. CONCLUSION: The uncertain disease trajectory was not only experienced by carers but also healthcare professionals. Although referral to specialist palliative care services was perceived as increasing, the availability and coordination of generalist and specialist palliative care services were fragmented and varied dependent on geographical location.
https://eprints.bournemouth.ac.uk/30073/
Source: PubMed
The experience of palliative care service provision for people with non-malignant respiratory disease and their family carers: An all-Ireland qualitative study
Authors: Mc Veigh, C., Reid, J., Larkin, P., Porter, S. and Hudson, P.
Journal: JOURNAL OF ADVANCED NURSING
Volume: 74
Issue: 2
Pages: 383-394
eISSN: 1365-2648
ISSN: 0309-2402
DOI: 10.1111/jan.13453
https://eprints.bournemouth.ac.uk/30073/
Source: Web of Science (Lite)
The experience of palliative care service provision for people with non-malignant respiratory disease and their family carers: An all-Ireland qualitative study.
Authors: Mc Veigh, C., Reid, J., Larkin, P., Porter, S. and Hudson, P.
Journal: Journal of advanced nursing
Volume: 74
Issue: 2
Pages: 383-394
eISSN: 1365-2648
ISSN: 0309-2402
DOI: 10.1111/jan.13453
Abstract:Aim
To explore specialist and generalist palliative care provision for people with non-malignant respiratory disease, in rural and urban areas in the North and Republic of Ireland.Background
Globally, palliative care is recommended as an appropriate healthcare option for people with advanced non-malignant lung disease. Yet, there is limited evidence regarding the integration of palliative care for this client group.Design
Qualitative study.Methods
Convenience sample of 17 bereaved carers and 18 healthcare professionals recruited from two rural and two urban sites on the Island of Ireland. Data were collected throughout 2012 and 2013 through semi-structured interviews with carers of patients with Chronic Obstructive Pulmonary Disease (N = 12), interstitial lung disease (N = 4) or bronchiectasis (N = 1) who had died 3-18 months previously; and four focus groups with healthcare professionals. Data were analysed using a thematic analysis framework.Results
Carers' interviews yielded three overarching themes: (1) lack of preparedness for death, due to ambiguity regarding disease trajectory; (2) lack of consistency in palliative care delivery, in relation with the receipt of generalist and specialist palliative care; and (3) role ambiguity, related to their caregiving role. Focus groups identified two overarching themes: (1) barriers to appropriate palliative care; and (2) the future direction of palliative care for patient with non-malignant respiratory disease.Conclusion
The uncertain disease trajectory was not only experienced by carers but also healthcare professionals. Although referral to specialist palliative care services was perceived as increasing, the availability and coordination of generalist and specialist palliative care services were fragmented and varied dependent on geographical location.https://eprints.bournemouth.ac.uk/30073/
Source: Europe PubMed Central
The experience of palliative care service provision for people with non-malignant respiratory disease and their family carers: an all-Ireland qualitative study.
Authors: McVeigh, C., Reid, J., Larkin, P., Porter, S. and Hudson, P.
Journal: Journal of Advanced Nursing
Volume: 74
Issue: 2
Pages: 383-394
ISSN: 0309-2402
Abstract:AIM: To explore specialist and generalist palliative care provision for people with non-malignant respiratory disease, in rural and urban areas in the North and Republic of Ireland. BACKGROUND: Globally, palliative care is recommended as an appropriate healthcare option for people with advanced non- malignant lung disease. Yet, there is limited evidence regarding the integration of palliative care for this client group. DESIGN: Qualitative study. METHODS: Convenience sample of 17 bereaved carers and 18 healthcare professionals recruited from two rural and two urban sites on the Island of Ireland. Data were collected throughout 2012 and 2013 through semi-structured interviews with carers of patients with Chronic Obstructive Pulmonary Disease (N=12), interstitial lung disease (N=4) or bronchiectasis (N=1) who had died 3-18 months previously; and 4 focus groups with healthcare professionals. Data were analysed using a thematic analysis framework. RESULTS: Carers' interviews yielded three overarching themes:1) Lack of preparedness for death, due to ambiguity regarding disease trajectory; 2) Lack of consistency in palliative care delivery, in relation to the receipt of generalist and specialist palliative care; and 3) Role ambiguity, related to their caregiving role. Focus groups identified two overarching themes:1) Barriers to appropriate palliative care; and 2) The future direction of palliative care for patient with non-malignant respiratory disease. CONCLUSION: The uncertain disease trajectory was not only experienced by carers but also healthcare professionals. Although referral to specialist palliative care services was perceived as increasing, the availability and coordination of generalist and specialist palliative care services were fragmented and varied dependent on geographical location. This article is protected by copyright. All rights reserved.
https://eprints.bournemouth.ac.uk/30073/
Source: BURO EPrints