Palliative and end of life care for a child: Understanding parents’ coping strategies

Authors: Darlington, A.S., Randall, D., Leppard, L. and Koh, M.

Journal: Acta Paediatrica, International Journal of Paediatrics

Volume: 110

Issue: 2

Pages: 673-681

eISSN: 1651-2227

ISSN: 0803-5253

DOI: 10.1111/apa.15429

Abstract:

Aim: Understanding of coping strategies that parents use before the death of their child is crucial and will enable us to best provide support. The current study aimed to explore parents’ coping strategies, and map these onto an existing theoretical framework. Methods: Bereaved parents and parents of a child with a life-limiting/threatening condition were interviewed to investigate coping strategies, recruited through Intensive Care Units (2 Neonatal, 2 Paediatric, 1 Paediatric Cardiac) and a children's hospice. Analysis focused on coping strategies and mapping these onto the framework. Results: 24 parents of 20 children were interviewed and identified. Parents use a variety of coping strategies (n = 25) such as humour, staying positive, advocating and staying strong for others, expressing emotions and preparing, while also living life to the full, supported by others. The themes were successfully mapped onto the theoretical framework, which focuses on the constructs of approach and avoidance, as well as coping for self and others. Conclusion: The findings have provided a detailed account of the breadth and depth of coping strategies parents use, including those classed as avoidance. The strategies were successfully mapped onto the theoretical framework. Future research should investigate changes over times, and associations to negative long-term outcomes.

https://eprints.bournemouth.ac.uk/34183/

Source: Scopus

Palliative and end of life care for a child: Understanding parents' coping strategies.

Authors: Darlington, A.-S., Randall, D., Leppard, L. and Koh, M.

Journal: Acta Paediatr

Volume: 110

Issue: 2

Pages: 673-681

eISSN: 1651-2227

DOI: 10.1111/apa.15429

Abstract:

AIM: Understanding of coping strategies that parents use before the death of their child is crucial and will enable us to best provide support. The current study aimed to explore parents' coping strategies, and map these onto an existing theoretical framework. METHODS: Bereaved parents and parents of a child with a life-limiting/threatening condition were interviewed to investigate coping strategies, recruited through Intensive Care Units (2 Neonatal, 2 Paediatric, 1 Paediatric Cardiac) and a children's hospice. Analysis focused on coping strategies and mapping these onto the framework. RESULTS: 24 parents of 20 children were interviewed and identified. Parents use a variety of coping strategies (n = 25) such as humour, staying positive, advocating and staying strong for others, expressing emotions and preparing, while also living life to the full, supported by others. The themes were successfully mapped onto the theoretical framework, which focuses on the constructs of approach and avoidance, as well as coping for self and others. CONCLUSION: The findings have provided a detailed account of the breadth and depth of coping strategies parents use, including those classed as avoidance. The strategies were successfully mapped onto the theoretical framework. Future research should investigate changes over times, and associations to negative long-term outcomes.

https://eprints.bournemouth.ac.uk/34183/

Source: PubMed

Palliative and end of life care for a child: Understanding parents' coping strategies

Authors: Darlington, A.-S., Randall, D., Leppard, L. and Koh, M.

Journal: ACTA PAEDIATRICA

Volume: 110

Issue: 2

Pages: 673-681

eISSN: 1651-2227

ISSN: 0803-5253

DOI: 10.1111/apa.15429

https://eprints.bournemouth.ac.uk/34183/

Source: Web of Science (Lite)

Palliative and end of life care for a child: understanding parents’ coping strategies

Authors: Darlington, A.S., Randall, D., Leppard, L. and Koh, M.

Journal: Acta Paediatrica: promoting child health

Publisher: Wiley-Blackwell

ISSN: 0803-5253

DOI: 10.1111/apa.15429

Abstract:

Aim Understanding of coping strategies that parents use before the death of their child is crucial, and will enable us to best provide support. The current study aimed to explore parents’ coping strategies, and map these onto an existing theoretical framework.

Methods Bereaved parents and parents of a child with a life‐limiting/threatening condition were interviewed to investigate coping strategies, recruited through Intensive Care Units (2 Neonatal, 2 Paediatric, 1 Paediatric Cardiac), and a children’s hospice. Analysis focused on coping strategies, and mapping these onto the framework.

Results 24 parents of 20 children were interviewed, and identified Parents use a variety of coping strategies (n=25) such as humour, staying positive, advocating and staying strong for others, expressing emotions and preparing, while also living life to the full, supported by others. The themes were successfully mapped onto the theoretical framework, which focuses on the constructs of approach and avoidance, as well as coping for self and others.

Conclusion The findings have provided a detailed account of the breadth and depth of coping strategies parents use, including those classed as avoidance. The strategies were successfully mapped onto the theoretical framework. Future research should investigate changes over times, and associations to negative long‐term outcomes.

https://eprints.bournemouth.ac.uk/34183/

Source: Manual

Palliative and end of life care for a child: Understanding parents' coping strategies.

Authors: Darlington, A.-S., Randall, D., Leppard, L. and Koh, M.

Journal: Acta paediatrica (Oslo, Norway : 1992)

Volume: 110

Issue: 2

Pages: 673-681

eISSN: 1651-2227

ISSN: 0803-5253

DOI: 10.1111/apa.15429

Abstract:

Aim

Understanding of coping strategies that parents use before the death of their child is crucial and will enable us to best provide support. The current study aimed to explore parents' coping strategies, and map these onto an existing theoretical framework.

Methods

Bereaved parents and parents of a child with a life-limiting/threatening condition were interviewed to investigate coping strategies, recruited through Intensive Care Units (2 Neonatal, 2 Paediatric, 1 Paediatric Cardiac) and a children's hospice. Analysis focused on coping strategies and mapping these onto the framework.

Results

24 parents of 20 children were interviewed and identified. Parents use a variety of coping strategies (n = 25) such as humour, staying positive, advocating and staying strong for others, expressing emotions and preparing, while also living life to the full, supported by others. The themes were successfully mapped onto the theoretical framework, which focuses on the constructs of approach and avoidance, as well as coping for self and others.

Conclusion

The findings have provided a detailed account of the breadth and depth of coping strategies parents use, including those classed as avoidance. The strategies were successfully mapped onto the theoretical framework. Future research should investigate changes over times, and associations to negative long-term outcomes.

https://eprints.bournemouth.ac.uk/34183/

Source: Europe PubMed Central

Palliative and end of life care for a child: understanding parents’ coping strategies.

Authors: Darlington, A.S., Randall, D., Leppard, L. and Koh, M.

Journal: Acta Paediatrica

Volume: 110

Issue: 2

Pages: 673-681

ISSN: 0803-5253

Abstract:

Aim: Understanding of coping strategies that parents use before the death of their child is crucial, and will enable us to best provide support. The current study aimed to explore parents’ coping strategies, and map these onto an existing theoretical framework. Methods: Bereaved parents and parents of a child with a life‐limiting/threatening condition were interviewed to investigate coping strategies, recruited through Intensive Care Units (2 Neonatal, 2 Paediatric, 1 Paediatric Cardiac), and a children’s hospice. Analysis focused on coping strategies, and mapping these onto the framework. Results: 24 parents of 20 children were interviewed, and identified Parents use a variety of coping strategies (n=25) such as humour, staying positive, advocating and staying strong for others, expressing emotions and preparing, while also living life to the full, supported by others. The themes were successfully mapped onto the theoretical framework, which focuses on the constructs of approach and avoidance, as well as coping for self and others. Conclusion: The findings have provided a detailed account of the breadth and depth of coping strategies parents use, including those classed as avoidance. The strategies were successfully mapped onto the theoretical framework. Future research should investigate changes over times, and associations to negative long‐term outcomes.

https://eprints.bournemouth.ac.uk/34183/

Source: BURO EPrints