The use of Twitter by people with young-onset dementia: A qualitative analysis of narratives and identity formation in the age of social media
Authors: Talbot, C.V., O’Dwyer, S.T., Clare, L. and Heaton, J.
Journal: Dementia
Volume: 20
Issue: 7
Pages: 2542-2557
eISSN: 1741-2684
ISSN: 1471-3012
DOI: 10.1177/14713012211002410
Abstract:A diagnosis of dementia in midlife can be challenging, causing losses or changes in a person’s identity. Narrative provides a means of reconstructing identity and can be communicated on social media. There has been initial evidence on the value of Twitter for people with dementia, but researchers have not yet directly engaged with users’ perspectives. We employed a narrative model of identity to examine why people with dementia use Twitter and what challenges they face. Interviews were conducted with 11 younger people with dementia and analysed thematically. Participants used Twitter to counter a loss of identity through community membership and by regaining a sense of purpose. They sought to redefine dementia identities by challenging stigma and campaigning for social change. The character limit of tweets facilitated narrative through which participants preserved their identities. These findings suggest that Twitter could be an important source of post-diagnostic support for people with young-onset dementia. However, there are some risks as Twitter was sometimes a hostile environment for individuals who did not present in a ‘typical’ manner, or faced technical difficulties because of their symptoms. In the future, platform developers could work with people with dementia to make Twitter more accessible for this group.
https://eprints.bournemouth.ac.uk/35189/
Source: Scopus
The use of Twitter by people with young-onset dementia: A qualitative analysis of narratives and identity formation in the age of social media.
Authors: Talbot, C.V., O'Dwyer, S.T., Clare, L. and Heaton, J.
Journal: Dementia (London)
Volume: 20
Issue: 7
Pages: 2542-2557
eISSN: 1741-2684
DOI: 10.1177/14713012211002410
Abstract:A diagnosis of dementia in midlife can be challenging, causing losses or changes in a person's identity. Narrative provides a means of reconstructing identity and can be communicated on social media. There has been initial evidence on the value of Twitter for people with dementia, but researchers have not yet directly engaged with users' perspectives. We employed a narrative model of identity to examine why people with dementia use Twitter and what challenges they face. Interviews were conducted with 11 younger people with dementia and analysed thematically. Participants used Twitter to counter a loss of identity through community membership and by regaining a sense of purpose. They sought to redefine dementia identities by challenging stigma and campaigning for social change. The character limit of tweets facilitated narrative through which participants preserved their identities. These findings suggest that Twitter could be an important source of post-diagnostic support for people with young-onset dementia. However, there are some risks as Twitter was sometimes a hostile environment for individuals who did not present in a 'typical' manner, or faced technical difficulties because of their symptoms. In the future, platform developers could work with people with dementia to make Twitter more accessible for this group.
https://eprints.bournemouth.ac.uk/35189/
Source: PubMed
The use of Twitter by people with young-onset dementia: A qualitative analysis of narratives and identity formation in the age of social media
Authors: Talbot, C.V., O'Dwyer, S.T., Clare, L. and Heaton, J.
Journal: DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE
Volume: 20
Issue: 7
Pages: 2542-2557
eISSN: 1741-2684
ISSN: 1471-3012
DOI: 10.1177/14713012211002410
https://eprints.bournemouth.ac.uk/35189/
Source: Web of Science (Lite)
The use of Twitter by people with young-onset dementia: A qualitative analysis of narratives and identity formation in the age of social media
Authors: Talbot, C., O'Dwyer, S.T., Clare, L. and Heaton, J.
Journal: Dementia
Volume: 20
Issue: 7
Pages: 2542-2557
ISSN: 1013-7424
DOI: 10.1177/14713012211002410
Abstract:A diagnosis of dementia in mid-life can be challenging, causing losses or changes in a person’s identity. Narrative provides a means of reconstructing identity and can be communicated on social media. There has been initial evidence on the value of Twitter for people with dementia, but researchers have not yet directly engaged with users’ perspectives. We employed a narrative model of identity to examine why people with dementia use Twitter and what challenges they face. Interviews were conducted with 11 younger people with dementia and analysed thematically. Participants used Twitter to counter a loss of identity through community membership and by regaining a sense of purpose. They sought to redefine dementia identities by challenging stigma and campaigning for social change. The character limit of tweets facilitated narrative through which participants preserved their identities. These findings suggest that Twitter could be an important source of post-diagnostic support for people with young-onset dementia. However, there are some risks as Twitter was sometimes a hostile environment for individuals who did not present in a ‘typical’ manner, or faced technical difficulties because of their symptoms. In the future, platform developers could work with people with dementia to make Twitter more accessible for this group.
https://eprints.bournemouth.ac.uk/35189/
Source: Manual
The use of Twitter by people with young-onset dementia: A qualitative analysis of narratives and identity formation in the age of social media.
Authors: Talbot, C.V., O'Dwyer, S.T., Clare, L. and Heaton, J.
Journal: Dementia (London, England)
Volume: 20
Issue: 7
Pages: 2542-2557
eISSN: 1741-2684
ISSN: 1471-3012
DOI: 10.1177/14713012211002410
Abstract:A diagnosis of dementia in midlife can be challenging, causing losses or changes in a person's identity. Narrative provides a means of reconstructing identity and can be communicated on social media. There has been initial evidence on the value of Twitter for people with dementia, but researchers have not yet directly engaged with users' perspectives. We employed a narrative model of identity to examine why people with dementia use Twitter and what challenges they face. Interviews were conducted with 11 younger people with dementia and analysed thematically. Participants used Twitter to counter a loss of identity through community membership and by regaining a sense of purpose. They sought to redefine dementia identities by challenging stigma and campaigning for social change. The character limit of tweets facilitated narrative through which participants preserved their identities. These findings suggest that Twitter could be an important source of post-diagnostic support for people with young-onset dementia. However, there are some risks as Twitter was sometimes a hostile environment for individuals who did not present in a 'typical' manner, or faced technical difficulties because of their symptoms. In the future, platform developers could work with people with dementia to make Twitter more accessible for this group.
https://eprints.bournemouth.ac.uk/35189/
Source: Europe PubMed Central
The use of Twitter by people with young-onset dementia: A qualitative analysis of narratives and identity formation in the age of social media
Authors: Talbot, C.V., O'Dwyer, S.T., Clare, L. and Heaton, J.
Journal: Dementia
Volume: 20
Issue: 7
Pages: 2542-2557
ISSN: 1013-7424
Abstract:A diagnosis of dementia in mid-life can be challenging, causing losses or changes in a person’s identity. Narrative provides a means of reconstructing identity and can be communicated on social media. There has been initial evidence on the value of Twitter for people with dementia, but researchers have not yet directly engaged with users’ perspectives. We employed a narrative model of identity to examine why people with dementia use Twitter and what challenges they face. Interviews were conducted with 11 younger people with dementia and analysed thematically. Participants used Twitter to counter a loss of identity through community membership and by regaining a sense of purpose. They sought to redefine dementia identities by challenging stigma and campaigning for social change. The character limit of tweets facilitated narrative through which participants preserved their identities. These findings suggest that Twitter could be an important source of post-diagnostic support for people with young-onset dementia. However, there are some risks as Twitter was sometimes a hostile environment for individuals who did not present in a ‘typical’ manner, or faced technical difficulties because of their symptoms. In the future, platform developers could work with people with dementia to make Twitter more accessible for this group.
https://eprints.bournemouth.ac.uk/35189/
Source: BURO EPrints