Athletes with neurodegenerative disease: A phenomenological exploration of family members' experiences

Authors: Smith, M., Young, G., Batten, J., Anderson, E., Parry, K.D., Collins, R. and White, A.J.

Journal: Qualitative Report

Volume: 26

Issue: 11

Pages: 3492-3518

ISSN: 1052-0147

DOI: 10.46743/2160-3715/2021.4899

Abstract:

This qualitative study involved in-depth interviews with 15 family members (mainly partners and children) of deceased athletes who experienced deterioration in their neurological health towards the end of their life. The purpose of this study was to examine the stressors these family members experienced with the ailed players, their emotional responses to their family member's condition, as well as the coping strategies they used. Vertical and horizontal thematic analyses were conducted on the data, which revealed five distinct temporal stages, a range of emotional responses, as well as accompanying stressors and coping strategies at each temporal stage. The findings are presented as an ethnodrama, capturing the lived experiences of participants. This ethnodrama aims to resonate with those caring for family members who are experiencing deteriorating neurological health, while also raising awareness of the various emotional responses of the individuals in these situations, as well as inviting dialogue and reflection about these issues.

http://eprints.bournemouth.ac.uk/36137/

Source: Scopus

Athletes with Neurodegenerative Disease: A Phenomenological Exploration of Family Members' Experiences

Authors: Smith, M.J., Young, G., Batten, J., Parry, K.D., Collins, R., Anderson, E. and White, A.

Journal: QUALITATIVE REPORT

Volume: 26

Issue: 11

Pages: 3492-3518

ISSN: 2160-3715

DOI: 10.46743/2160-3715/2021.4899

http://eprints.bournemouth.ac.uk/36137/

Source: Web of Science (Lite)

Athletes with Neurodegenerative Disease: A Phenomenological Exploration of Family Members’ Experiences

Authors: Smith, M., Young, G., Batten, J., Parry, K.D., Collins, R., Anderson, E. and White, A.J.

Journal: The Qualitative Report

Volume: 26

Issue: 11

Abstract:

This qualitative study involved in-depth interviews with 15 family members (mainly partners and children) of deceased athletes who experienced deterioration in their neurological health towards the end of their life. The purpose of this study was to examine the stressors these family members experienced with the ailed players, their emotional responses to their family member’s condition, as well as the coping strategies they used. Vertical and horizontal thematic analyses were conducted on the data, which revealed five distinct temporal stages, a range of emotional responses, as well as accompanying stressors and coping strategies at each temporal stage. The findings are presented as an ethnodrama, capturing the lived experiences of participants. This ethnodrama aims to resonate with those caring for family members who are experiencing deteriorating neurological health, while also raising awareness of the various emotional responses of the individuals in these situations, as well as inviting dialogue and reflection about these issues.

http://eprints.bournemouth.ac.uk/36137/

Source: Manual

Athletes with Neurodegenerative Disease: A Phenomenological Exploration of Family Members’ Experiences

Authors: Smith, M., Young, G., Batten, J., Parry, K.D., Collins, R., Anderson, E. and White, A.J.

Journal: Qualitative Report

Volume: 26

Issue: 11

Pages: 3492-3518

ISSN: 1052-0147

Abstract:

This qualitative study involved in-depth interviews with 15 family members (mainly partners and children) of deceased athletes who experienced deterioration in their neurological health towards the end of their life. The purpose of this study was to examine the stressors these family members experienced with the ailed players, their emotional responses to their family member’s condition, as well as the coping strategies they used. Vertical and horizontal thematic analyses were conducted on the data, which revealed five distinct temporal stages, a range of emotional responses, as well as accompanying stressors and coping strategies at each temporal stage. The findings are presented as an ethnodrama, capturing the lived experiences of participants. This ethnodrama aims to resonate with those caring for family members who are experiencing deteriorating neurological health, while also raising awareness of the various emotional responses of the individuals in these situations, as well as inviting dialogue and reflection about these issues.

http://eprints.bournemouth.ac.uk/36137/

Source: BURO EPrints