The choice for colostomy following spinal cord injury: A grounded theory study
Authors: Boucher, M.L., Gelling, L. and Tait, D.
Journal: Journal of Clinical Nursing
Volume: 33
Issue: 3
Pages: 1094-1109
eISSN: 1365-2702
ISSN: 0962-1067
DOI: 10.1111/jocn.16885
Abstract:Aim: Explore experiences and choices related to bowel management following spinal cord injury. Background: In one UK spinal centre, more are choosing a colostomy soon after injury in contravention of professional guidelines. Reasons for this were unknown. Methods: Grounded theory study using semi-structured interviews with 12 individuals living with spinal cord injury. Results: All ‘Experienced Loss’ related to bowel function. Those who chose colostomy later ‘Progressed into Suffering’. Colostomy transformed lives and was likened to ‘Being Alive Again’. ‘Failures of Care’ contributed to experiences and decision-making. Conclusion: Possessing information and choice emerge as key in transforming lives following spinal cord injury. They allow individuals to make choices from a lifeworld perspective, which may differ from those professionals assume. Present neurogenic bowel management guidelines fail to account for the wider lifeworlds of those they are designed for. Implications for the Profession and Patient Care: An imperative emerges to make information and choice available and involve patients in the reconstruction of guidelines. Impact: Unique knowledge emerges about patient experiences and motivations, and points to a patient-led revolution in how bowel management following spinal cord injury is understood and managed. The imperative for adequate access to information and choice is demonstrated. Reporting Method: EQUATOR Standards for Reporting Qualitative Research (SRQR) were adhered to. Patient or Public Contribution: The methodology facilitated discussion of areas important to patients and made them co-constructors of theory.
https://eprints.bournemouth.ac.uk/39006/
Source: Scopus
The choice for colostomy following spinal cord injury: A grounded theory study.
Authors: Boucher, M.L., Gelling, L. and Tait, D.
Journal: J Clin Nurs
Volume: 33
Issue: 3
Pages: 1094-1109
eISSN: 1365-2702
DOI: 10.1111/jocn.16885
Abstract:AIM: Explore experiences and choices related to bowel management following spinal cord injury. BACKGROUND: In one UK spinal centre, more are choosing a colostomy soon after injury in contravention of professional guidelines. Reasons for this were unknown. METHODS: Grounded theory study using semi-structured interviews with 12 individuals living with spinal cord injury. RESULTS: All 'Experienced Loss' related to bowel function. Those who chose colostomy later 'Progressed into Suffering'. Colostomy transformed lives and was likened to 'Being Alive Again'. 'Failures of Care' contributed to experiences and decision-making. CONCLUSION: Possessing information and choice emerge as key in transforming lives following spinal cord injury. They allow individuals to make choices from a lifeworld perspective, which may differ from those professionals assume. Present neurogenic bowel management guidelines fail to account for the wider lifeworlds of those they are designed for. IMPLICATIONS FOR THE PROFESSION AND PATIENT CARE: An imperative emerges to make information and choice available and involve patients in the reconstruction of guidelines. IMPACT: Unique knowledge emerges about patient experiences and motivations, and points to a patient-led revolution in how bowel management following spinal cord injury is understood and managed. The imperative for adequate access to information and choice is demonstrated. REPORTING METHOD: EQUATOR Standards for Reporting Qualitative Research (SRQR) were adhered to. PATIENT OR PUBLIC CONTRIBUTION: The methodology facilitated discussion of areas important to patients and made them co-constructors of theory.
https://eprints.bournemouth.ac.uk/39006/
Source: PubMed
The choice for colostomy following spinal cord injury: A grounded theory study
Authors: Boucher, M.L., Gelling, L. and Tait, D.
Journal: JOURNAL OF CLINICAL NURSING
Volume: 33
Issue: 3
Pages: 1094-1109
eISSN: 1365-2702
ISSN: 0962-1067
DOI: 10.1111/jocn.16885
https://eprints.bournemouth.ac.uk/39006/
Source: Web of Science (Lite)
The choice for colostomy following spinal cord injury: a Grounded Theory study.
Authors: Boucher, M., Gelling, L. and Tait, D.
Journal: Journal of Clinical Nursing
Volume: 33
Issue: 3
Pages: 1094-1109
Publisher: Wiley-Blackwell
ISSN: 0962-1067
DOI: 10.1111/jocn.16885
Abstract:Aim: Explore experiences and choices related to bowel management following spinal cord injury.
Background: In one UK spinal centre more are choosing a colostomy soon after injury in contravention of professional guidelines. Reasons for this were unknown.
Keywords: spinal cord injury, colostomy, stoma, neurogenic bowel management, long-term care, grounded theory Methods: Grounded theory study using semi-structured interviews with twelve individuals living with spinal cord injury. Results: All ‘Experienced Loss’ related to bowel function. Those who chose colostomy later ‘Progressed into Suffering’. Colostomy transformed lives and was likened to ‘Being Alive Again’. ‘Failures of Care’ contributed to experiences and decision-making. Conclusion: Possessing information and choice emerge as key in transforming lives following spinal cord injury. They allow individuals to make choices from a lifeworld perspective, which may differ from those professionals assume. Present neurogenic bowel management guidelines fail to account for the wider lifeworlds of those they are designed for.
https://eprints.bournemouth.ac.uk/39006/
https://onlinelibrary.wiley.com/journal/13652702
Source: Manual
The choice for colostomy following spinal cord injury: A grounded theory study.
Authors: Boucher, M.L., Gelling, L. and Tait, D.
Journal: Journal of clinical nursing
Volume: 33
Issue: 3
Pages: 1094-1109
eISSN: 1365-2702
ISSN: 0962-1067
DOI: 10.1111/jocn.16885
Abstract:Aim
Explore experiences and choices related to bowel management following spinal cord injury.Background
In one UK spinal centre, more are choosing a colostomy soon after injury in contravention of professional guidelines. Reasons for this were unknown.Methods
Grounded theory study using semi-structured interviews with 12 individuals living with spinal cord injury.Results
All 'Experienced Loss' related to bowel function. Those who chose colostomy later 'Progressed into Suffering'. Colostomy transformed lives and was likened to 'Being Alive Again'. 'Failures of Care' contributed to experiences and decision-making.Conclusion
Possessing information and choice emerge as key in transforming lives following spinal cord injury. They allow individuals to make choices from a lifeworld perspective, which may differ from those professionals assume. Present neurogenic bowel management guidelines fail to account for the wider lifeworlds of those they are designed for.Implications for the profession and patient care
An imperative emerges to make information and choice available and involve patients in the reconstruction of guidelines.Impact
Unique knowledge emerges about patient experiences and motivations, and points to a patient-led revolution in how bowel management following spinal cord injury is understood and managed. The imperative for adequate access to information and choice is demonstrated.Reporting method
EQUATOR Standards for Reporting Qualitative Research (SRQR) were adhered to.Patient or public contribution
The methodology facilitated discussion of areas important to patients and made them co-constructors of theory.https://eprints.bournemouth.ac.uk/39006/
Source: Europe PubMed Central
The choice for colostomy following spinal cord injury: a Grounded Theory study.
Authors: Boucher, M.L., Gelling, L. and Tait, D.
Journal: Journal of Clinical Nursing
Publisher: Wiley-Blackwell
ISSN: 0962-1067
Abstract:Aim: Explore experiences and choices related to bowel management following spinal cord injury.
Background: In one UK spinal centre more are choosing a colostomy soon after injury in contravention of professional guidelines. Reasons for this were unknown.
Keywords: spinal cord injury, colostomy, stoma, neurogenic bowel management, long-term care, grounded theory
Methods: Grounded theory study using semi-structured interviews with twelve individuals living with spinal cord injury. Results: All ‘Experienced Loss’ related to bowel function. Those who chose colostomy later ‘Progressed into Suffering’. Colostomy transformed lives and was likened to ‘Being Alive Again’. ‘Failures of Care’ contributed to experiences and decision-making. Conclusion: Possessing information and choice emerge as key in transforming lives following spinal cord injury. They allow individuals to make choices from a lifeworld perspective, which may differ from those professionals assume. Present neurogenic bowel management guidelines fail to account for the wider lifeworlds of those they are designed for.
https://eprints.bournemouth.ac.uk/39006/
Source: BURO EPrints