What I Would Like to Say… Whatever It Takes – Cancer Care for Everyone
Authors: Munday, K., Tansley, R., Jupp, K., Corbin-Clarke, S. and Durrant, A.
Publisher: Centre for Seldom Heard Voices
Place of Publication: Bournemouth
Abstract:This report explores disabled, chronically ill, visually impaired and neurodivergent people’s experiences of cancer services, to support us in developing recommendations aimed towards improving the accessibility of these services. We also explore how using the BU PIER Community Researcher Model provides a level of shared understanding between the research team and community members to enable us to capture the perspectives of individuals currently underserved by health and social care research.
This project was commissioned by Macmillan Cancer Support and Wessex Cancer Alliance, and overseen by Involving People – Help & Care, Bournemouth University’s Public Involvement in Education and Research [PIER] partnership and the Research Centre for Seldom Heard Voices. Two disabled and neurodivergent community researchers were supported to lead the project, and a clinical nurse specialist who works across hospital and community settings to support patients during their cancer journey was recruited.
This report is supplemented with case studies and quotes, drawn from workshops with community groups, from which we developed a set of recommendations that we hope can support cancer service providers to improve their practice.
Source: Manual