Developing a FACETS digital toolkit
Conference: MS Frontiers 2019Abstract:
Fatigue is a highly debilitating symptom experienced by the majority of people with MS and third in the James Lind Alliance ‘Top 10’ research priorities. Over 1500 people with MS in the UK have received FACETS, a group-based fatigue management programme, shown to be effective in a national multi-centre randomised controlled trial. Homework tasks are integral to FACETS, enabling strategies learned to be translated into everyday life.
A recommendation from a consultation we undertook with people with MS and healthcare professionals about online delivery models was for the homework elements to be made available as a suite of mobile apps, enabling on-the-go use, real-time symptom monitoring and reminders.
We are currently developing this toolkit – for use alone or in combination with FACETS – for Android, with ongoing input from people with MS. We describe progress to date (including scoping, card sorting, wire-framing and usability testing phases), challenges encountered and what’s next.